tag:blogger.com,1999:blog-26885147.post2030335204809684089..comments2023-05-16T07:24:27.145-04:00Comments on So a Blonde Walks Into a Blog: Interstitial Cystitis Awareness Month - Don't Judge a Book by It's Cover (or a Person by Their Appearance)BlondeBloggerhttp://www.blogger.com/profile/05914759722134808069noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-26885147.post-80643288276346676482014-11-23T14:16:31.293-05:002014-11-23T14:16:31.293-05:00ThanksThankshttp://el-blues.blogspot.com.ar/http://el-blues.blogspot.com.ar/noreply@blogger.comtag:blogger.com,1999:blog-26885147.post-53195279364846201342013-11-15T09:20:06.859-05:002013-11-15T09:20:06.859-05:00Nice blog!
Paulo Gonçalves
http://viajaredescobrir...Nice blog!<br />Paulo Gonçalves<br />http://viajaredescobrir.blogspot.comPaulo Gonçalveshttps://www.blogger.com/profile/11404634871000362872noreply@blogger.comtag:blogger.com,1999:blog-26885147.post-76461334350149817452013-09-24T03:56:54.411-04:002013-09-24T03:56:54.411-04:00Well written! Thank you so much for what you do to...Well written! Thank you so much for what you do to bring awareness to the "invisible diseases" that cause more than just pain and depression due to lack of understanding. <br /><br />It is so weird that you bring up Blue October, who is my favorite band too because I started a new blog as a countdown to a show of theirs that I have gotten tickets for. Problem is, I am agoraphobic and have fibromyalgia, among other things.. but I am determined to finally beat agoraphobia and Blue October is the bait I am dangling in front of myself to do it. <br /><br />I figure that there is no way I will miss seeing them live. This will also be my first concert ever. I am so excited, but scared to death as well and very much worried about things like seating because of my conditions. I am so sorry about your experience and it's exactly what I'm afraid of. <br /><br />I am the one taking this leap and putting myself in this situation so no, I don't expect special treatment either, but I do want to enjoy what I am working so hard for. This will probably be the only concert I ever get the chance to go to, not that I care to see anyone else live. ;) Unless they roll back through here.. <br /><br />From what I understand, this show in Little Rock is going to be in a pretty small space over a restaurant and I don't know if there will even be seating, but I can't stand for very long either without the pain becoming unbearable. My doctor has agreed to give me a steroid shot, which I already tried just to make sure there were no bad reactions the day before the concert. And while I didn't have any bad side effects with it, what little relief from the pain I got, I didn't even realize I had gotten until the shot wore off and the pain was back full force again. At least now I know it did help some.<br /><br />Right now, the only place I do go is my doctors office. Before that I hadn't left my house in close to three years. Even then, I was forced out because I was in so much pain for so long and eating ibuprophen like candy even though it didn't help. My depression got much worse and I started having panic attacks again so my mom and husband forced me out and after two months of doctors and specialists and x-rays and ruling out everything else, I was diagnosed with FM. <br /><br />I love the honesty Justin has about his conditions and his own struggles and that he also brings awareness to the "but you look fine" illnesses and it's a major part of my connection to his songwriting. He has a great talent for somehow making sense of these crazy thoughts with song and he's in such a better place now. You can see it in his eyes and hear it in his voice. I am so happy for him and that and of course some of the songs on Sway have totally inspired me to fight to get my life back. Or at least the part that let's me out of my house. =) <br /><br />I would love to talk to you about this more privately because it sounds like you know some things that I should know so that I will be better prepared to leave my house. Hope you can talk soon.. I only have 25 days left to overcome the agoraphobia to even make it to the show. I'll follow your link to Twitter and you can DM me when you have time? <br /><br />Hugs,<br />MichelleAnonymoushttps://www.blogger.com/profile/00101440246846694211noreply@blogger.comtag:blogger.com,1999:blog-26885147.post-58972848445526382022013-09-21T18:41:06.288-04:002013-09-21T18:41:06.288-04:00Brilliantly written, Blondie. You know I have suf...Brilliantly written, Blondie. You know I have suffered with this disease for over 30 years. Back in the 80's they had NO clue what IC was. I got accused of all sorts of things, including "she's doing this for attention". Who the HELL would want that kind of attention? It took 20 doctors or so to finally validate my illness after 33 years. Now finally at 47 years old, I have vindication...but no closer to a cure. Thank you for being willing to talk about your situation. It's the conversation that will lead to a cure. xoxox<br /><br />Cher.CPhttps://www.blogger.com/profile/08266202135270130146noreply@blogger.com